Our World

Newsletter for the centronuclear and myotubular myopathy community

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2016

  • 214th ENMC workshop: establishing an international consortium for gene discovery and clinical research for congenital muscle diseases
  • 219th ENMC workshop: Titinopathies – International database of TTN mutations and phenotypes
  • 10 years, 10 miles, 10 bridges
  • Bank of England Charity of the Year
  • How I met your father
  • Myo the travelling turtle: 2016
  • Myotubular and Centronuclear Myopathy Patient Registry (Accelerating the pace of research and treatment for MTM and CNM)
  • Myotubular Trust 2016 film
  • Rare Disease Day: 2016
  • Spaceathlon
  • Balloons for Emil
  • Now we are fifteen
  • Seeking vision
  • Sukhi skis

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