- The Big Sunflower Project
- Sunflowers for Emil
- Research news
- An interview with Jim Dowling
- Dynacure joins ongoing Natural History Study in Centronuclear Myopathies
- Audentes Therapeutics announces dosing of first patient in a clinical trial for the treatment of X-Linked myotubular myopathy
- An update on The Myotubular and Centronuclear Myopathy (MTM and CNM) Patient Registry
- Fundraising walks
- US MTM-CNM family conference 2017
- Myo the travelling turtle: 2017
- German General Meeting and Family Conference
- Rare Disease Day and Blue for the Cure
- Picture perfect
- Sixteen candles
- Profile of the RYR-1 Foundation
- Shave or save
- BBC Radio 4 charity appeal
- Easyfundraising
- New collaboration with Action Medical Research
- Respiratory care in centronuclear and myotubular myopathy
- A short film about Jackson
- A short film about Adam
- The intern
