The fifth biennial US MTM-CNM Family Conference took place 21 – 23 July 2017 in Nashville, Tennessee – ‘Music City USA’ – the theme was ‘Get Your Boots On’.
Over 200 people attended the conference gathering 48 families and 30 professionals from the centronuclear and myotubular myopathy communicy. Twenty eight states and four countries were represented, as well as so many families represented in spirit who were not able to travel.
Several lead researchers and pharma industry professionals working on behalf of the community joined the event to share the very latest on MTM and CNM research and advancements in treatments and engage in an interactive medical forum discussion along with patients and families.
Families and individuals also shared valuable information about living with MTM and CNM and helpful resources with each other and strong connections were made over the weekend.
There were many highlights throughout the weekend and you can read about these in the MTM-CNM Family Connection newsletter below.