Our World

Newsletter for the centronuclear and myotubular myopathy community

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2018

  • Rare Disease Day
  • Audentes Therapeutics announces continuing positive data
  • New website for Dynacure
  • Myotubular Trust launch new website
  • MTM-CNM Patient Registry
  • Charity of the year 2017
  • London Hope Walk
  • Miles for Miracles
  • European family conference 2018
  • German family conference 2018
  • A date with royalty
  • Wacky Rally
  • Nathan’s Place
  • Love your garden

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