This article first appeared in the Information Point newsletter Our World in 2017, when the Myotubular Trust wrote about their collaboration with the renowned children’s medical research charity Action Medical Research in a quest to find treatments for myotubular and centronuclear myopathy.
Since founding in 1952 Action Medical Research has been instrumental in funding medical breakthroughs. They have made groundbreaking changes in the health of children – from the first UK polio vaccines to developing the use of ultrasound technology in pregnancy.
Earlier this year we announced a joint project grant for 2018 for translational research into myotubular and centronuclear myopathy for project grants of up to three years’ duration, with up to £200,000 available to principal investigators at UK institutions with researchers from outside the UK able to collaborate on UK-based projects if appropriate.
We are honoured that this highly respected children’s medical research charity has chosen to partner with Myotubular Trust and that we are united in our desire to change the lives of those with myotubular and centronuclear myopathy.