European family conference 2018

Adults and children affected by myotubular and centronuclear myopathies, their families, doctors and carers attended a family conference jointly hosted by the Myotubular Trust and ZNM – Zusammen Stark in London, on 14 and 15 July 2018.

Highlights included research updates on gene therapy clinical trials, upcoming clinical trials using DNM2 down regulation, drug repurposing for x-linked myotubular myopathy, day to day care, tracheostomy management, latest best practice in respiratory care, genes and genetic counselling.

European Family Conference 2018

Myotubular Trust and ZNM logo.

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