Our friends at Myotubular Trust have places on offer in several fundraising events this year. As there is no public funding available to fund research for centronuclear and myotubular myopathy, the Trust rely heavily on people taking part in these events and the support of the networks of those affected by the condition.
Given the rarity of centronuclear and myotubular myopathy, this network is relatively small but the funds raised by supporters to date has made a huge difference in the journey to finding a treatment for the conditions, whether it’s contributing to Ana Buj Bello’s work on gene therapy, Jocelyn Laporte’s work on DNM2 down regulation, Jim Dowling’s pre-clinical work on re-purposing tamoxifen for x-linked myotubular myopathy, or going toward the current grant round. You can see what a difference a small army of supporters can make below. A small army really can make a difference.
Places are on offer in several events this year, including some new events. If you, or someone you know, would like any further information about any of these events, or would like to take part, please email Myotubular Trust.
- London Hope Walk: Saturday 18 May 2019
A 10km walk from London Bridge to Battersea Park which takes walkers across 10 of London’s iconic bridges.
- London to Brighton Ultra Challenge: 25 and 26 May 2019
A 100km or 44km walk or run between London and Brighton, over either one or two days.
- ASICS London 10k: 21 July 2019
A 10km run for runners of all abilities which takes you through the streets of London and past some great attractions.
- Velo North: 1 September 2019
A closed road cycling event through the awe inspiring North Pennines countryside – 50 mile and 100 mile places available.
- Devon Hope Walk: 7 September 2019
A 10k rural coastal path walk, circling around the pretty Devon village of Noss Mayo.
- Serpentine Swim: 21 September 2019
Places available for both the one mile and two swims around the Serpentine in Hyde Park, London.
Please note: every penny raised by supporters goes into research, as the Myotubular Trust raise the running costs of the charity separately