UK patient update webinar

On 4 July 2020, the Myotubular Trust held a virtual coffee morning with some of the UK’s leading neuromuscular experts.

Professor Francesco Muntoni, Professor Ros Quinlivan and Dr Giovanni Baranello provided an update on what had been learnt about the impact of Covid 19 for neuromuscular patients in the UK.

They also presented on the ongoing and planned clinical trials in the UK for centronuclear and myotubular myopathy, shared their experiences of similar trials for other neuromuscular conditions, provided a summary of the UK regulatory processes – from how clinical trials get approved to how drugs get signed off by The National Institute for Health and Care Excellence (NICE) and undertook a question and answer session.

Presentations from the event can be found below.

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